UK ITP Forum

ITP Registries

The UK Adult ITP Registry

Director: Dr Vickie McDonald, Royal London Hospital
www.ukitpregistry.com
The UK Adult ITP Registry is a multi-centre study designed to collect clinical information (age at onset, bleeding symptoms, treatments given and responses), standard lab tests, and investigational assays. All this information will be analyzed looking for associations between the presence of genetic variations and (i) development of ITP, (ii) responses to treatment, (iii) severity of ITP and several other parameters. The Adult ITP Registry is supported by the ITP Support Association.

Registry newsletter March 2018 http://www.ukitpregistry.com/resources/UK-ITP-Registry-Newsletter.pdf


The UK Paediatric ITP Registry 


Director: Dr John Grainger, Royal Manchester Children’s Hospital
www.uk-itp.org
The UK Paediatric ITP registry is a multi-centre study designed to collect prospective data on all new cases of childhood immune thrombocytopenia (ITP). The database will continue to collect data for many years about children whose ITP fails to resolve. Clinical data, bleeding severity, platelet counts and management will be recorded. The Paediatric ITP Registry is supported by the ITP Support Association.

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